Beyond the Pale
Folklore, Family and the Mystery of Our Hidden GenesBook - 2016
Emily's story begins on St. Stephens Day, 2010, in St. Johns, Newfoundland when she gives birth to a baby girl named Sadie Jane with a shock of snow-white hair. Within 3 months Sadie is diagnosed with albinism, a rare genetic disorder where pigment fails to form in the skin, hair and eyes, with accompanying maladies such as photophobia and partial blindness. Emily is drawn to understanding her child's differences by researching the cultural beliefs associated with albinism worldwide; a journey that takes her to a faraway continent, through her own family tree, and all the while unearthing discoveries that vacillate between beauty, amazement and horror.
Publisher: London : 2016. Jacaranda,
Branch Call Number: ANF 362.19655009 URQU
Characteristics: xi, 278 pages ; 22 cm